Join us as we celebrate the 7th Annual Cystinosis Awareness Day with an electrifying regional meetup, courtesy of the Cystinosis Research Network. Nestled in the heart of Cincinnati, OH, this one-day event will take place on May 4th starting at 8am.
Prepare for a day of human connection and enlightenment as we learn from and about one another. Our special guest, Dr. Elizabeth Ames, is a geneticist hailing from the University of Michigan. She has collaborated closely with cystinosis expert Dr. Jess Thoene, accumulating a wealth of knowledge. Mark your calendars and seize the opportunity to be part of this gathering!
Visit our event page as details continue to roll out. Registration is complimentary but required for attendees. If you’d like to stay overnight, a discounted room rate has been negotiated with the Cincinnati Marriott RiverCenter where the event will take place. Questions? Contact our VP of Family Support, Chelsea Meschke at chelseam@cystinosis.org.