The New York Academy of Medicine is the location for this “first of its kind” event for healthcare professionals titled, Cystinosis Symposium: A Rare Disease Model for Comprehensive Care. The Cystinosis Research Network welcomes experts from a range of specialities including neuro, gastro, ortho, opthalmology, nephrology, social work, and more. In addition to medical professionals, we will hear from patients and caregivers on the challenges within rare disease and the transition from pediatric to adult care.
We will also dive into effective treatments for interrupting disease progression and the exciting potential of gene therapies. There is much more outlined in our agenda. Click here for details and to register today!