Cystinosis Community Zoom Night Thursday, January 15 at 7:30 PM ET Zoom link: https://us06web.zoom.us/j/88075560653 Join our next Zoom night for an evening of connection and conversation. These calls are open to everyone living with and impacted by cystinosis. It’s a welcoming space to share experiences, ask questions, and simply spend time together. Hosted by Chelsea […]
Taking place on the last day of February, Rare Disease Day is a global movement which aims to promote equity in social opportunities, healthcare, and access to diagnosis and therapies for individuals living with rare diseases. Check back for details on how to be a part of the CRN's Rare Disease Day Campaign to help […]
Join the Cystinosis Awareness Day Movement! Honor our 2,000 warriors in the most meaningful way to you. Let’s educate, raise awareness and raise funds. The 9th Annual Cystinosis Awareness […]
Cystinosis Ireland hosts the Cystinosis Network Europe's International Conference on July 3, 2026. The Dublin event offers scientific and family sessions, child care, time for socialization and translation for seven different languages. For details, go to https://www.cystinosis-europe.eu.