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Cystinosis Awareness Day – Family Meetup

Cincinnati Marriott RiverCenter 10 W Rivercenter Blvd, Covington, Kentucky, United States

See you in Cincinnati, Ohio! On May 4th, we are gathering for an in-person meet-up at the Cincinnati Marriott River Center. Join us for a day of connection, education, and celebration commemorating the 7th Annual Cystinosis Awareness Day. Registration is required and is now closed. Please contact Chelsea with questions at chelseam@cystinosis.org. Draft Agenda  8:30a […]

Cystinosis Awareness Day

Join us on and leading up to May 7th to promote cystinosis awareness, education and fundraising efforts. Our 7th annual awareness day campaign focuses on #CystinosisStereotypes with 3 ways go […]

Cystinosis Symposium: A Rare Disease Model for Comprehensive Care

The New York Academy of Medicine 1216 5th Ave, New York, NY, United States

The CRN is hosting an in-person event for healthcare professionals. Join us May 31, 2024 at The New York Academy of Medicine. Healthcare providers with a desire to learn more about comprehensive care in rare disease are encouraged to attend. Registration includes meals, refreshments and cocktail hour. See the draft agenda and register below to […]

$50

Cystinosis Network Europe International Conference

Manchester, England Manchester, United Kingdom

Registration for the Cystinosis Network Europe (CNE) International Conference, hosted by Cystinosis Foundation UK in Manchester in July are now open! Register here. Scientific meeting agenda Family meeting agenda CNE is offering assistance to families who will find the financial burden of travelling very high. We are looking forward to an amazing family and community […]