Name: Rare Disease Day
Start: 2019-02-28T00:00:00+00:00
End: 2019-02-28T23:59:59+00:00

July 2018
Cystinosis European Conference

July 15, 2018 - July 18, 2018

Movenpick Hotel Berlin Schoneberger Strasse

Coming Soon!
September 2018
Houston Cystinosis Meetup

September 8, 2018

Embassy Suites By Hilton Houston Energy Corridor 11730 Katy Freeway, Houston, TX

Coming Soon!
October 2018
American Society of Nephrology

October 25, 2018

San Diego Convention Center 111 W Harbor Dr., San Diego, CA

Coming Soon!
Indianapolis Cystinosis Meetup

October 30, 2018 @ 8:00 am - 5:00 pm

The Westin Indianapolis 241 W. Washington Street, Indianapolis, IN

Coming Soon!
November 2018
Charleston Cystinosis Meetup

November 3, 2018

Hilton Garden Inn 300 Wingo Way, Mt. Pleasant, SC

Coming Soon!
February 2019
Stand Up to Cystinosis

February 23, 2019 @ 10:00 am - 4:00 pm

Florence Strength and Conditioning 330 Weaver Road, #100, Florence, KY

Saturday, February 23, 2019 from 10:00 am – 4:00 pm We created this event to help raise money for cystinosis because this disease is something very near and dear to […]
Rare Disease Day

February 28, 2019

February 28, 2019 Worldwide Here's a fun way to "Share Your Rare" this Rare Disease Day - sign up for a free cystinosis ribbon temporary tattoo. Spread cystinosis awareness on […]