Cystinosis European Conference
Coming Soon!
7 events found.
Events
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Movenpick Hotel Berlin Schoneberger Strasse
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Houston Cystinosis Meetup
Embassy Suites By Hilton Houston Energy Corridor 11730 Katy Freeway, Houston, TXComing Soon!
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American Society of Nephrology
San Diego Convention Center 111 W Harbor Dr., San Diego, CAComing Soon!
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Indianapolis Cystinosis Meetup
The Westin Indianapolis 241 W. Washington Street, Indianapolis, INComing Soon!
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Charleston Cystinosis Meetup
Hilton Garden Inn 300 Wingo Way, Mt. Pleasant, SCComing Soon!
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Stand Up to Cystinosis
Florence Strength and Conditioning 330 Weaver Road, #100, Florence, KYSaturday, February 23, 2019 from 10:00 am – 4:00 pm We created this event to help raise money for cystinosis because this disease is something very near and dear to my heart. I have been living with this disease since I was 4-years-old. One day I was talking to my friend and trainer, JD, the […]
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Rare Disease Day
February 28, 2019 Worldwide Here's a fun way to "Share Your Rare" this Rare Disease Day - sign up for a free cystinosis ribbon temporary tattoo. Spread cystinosis awareness on Rare Disease Day, Cystinosis Awareness Day and all year long! We've transformed the cystinosis awareness ribbon into a temporary tattoo. Now you can “wear your […]
