For HCPs Donate
Logo
  • About Cystinosis
    • Cystinosis 101
    • Newly Diagnosed
    • Dialysis & Transplant
  • Support & Resources
    • Managing Cystinosis
    • Support Groups
    • Doctors in Your Area
    • Families in Your Area
    • Publications & Guides
    • Education
    • Special Programming
      • Live Like Laura Fun Fund
      • Cystinosis Memorial Fund
      • Care Package Program
    • Scholarships
  • Research
    • Grants Awarded
    • Updates
    • Participation
  • About Us
    • Leadership
    • Financials
    • By Laws
    • Contact Us
  • Our Impact
    • Inspirational Stories
  • How to Help
    • Donate
    • Face Mask from the CRN
    • Start a Fundraiser
  • News & Events
    • Events Calendar
    • Family Conference
    • Newsletter
    • Press Kit
10 events found.

Events

Events Search and Views Navigation

Event Views Navigation

  • List
  • Month
  • Day
  • Photo
  • Week
  • Map
Today
  • September 2018

  • Sat 8

    Houston Cystinosis Meetup

    September 8, 2018
    Embassy Suites By Hilton Houston Energy Corridor 11730 Katy Freeway, Houston, TX

    Coming Soon!

  • October 2018

  • Thu 25

    American Society of Nephrology

    October 25, 2018
    San Diego Convention Center 111 W Harbor Dr., San Diego, CA

    Coming Soon!

  • Tue 30

    Indianapolis Cystinosis Meetup

    October 30, 2018 @ 8:00 am - 5:00 pm
    The Westin Indianapolis 241 W. Washington Street, Indianapolis, IN

    Coming Soon!

  • November 2018

  • Sat 3

    Charleston Cystinosis Meetup

    November 3, 2018
    Hilton Garden Inn 300 Wingo Way, Mt. Pleasant, SC

    Coming Soon!

  • February 2019

  • Sat 23

    Stand Up to Cystinosis

    February 23, 2019 @ 10:00 am - 4:00 pm
    Florence Strength and Conditioning 330 Weaver Road, #100, Florence, KY

    Saturday, February 23, 2019 from 10:00 am – 4:00 pm We created this event to help raise money for cystinosis because this disease is something very near and dear to […]

  • Thu 28

    Rare Disease Day

    February 28, 2019

    February 28, 2019 Worldwide Here's a fun way to "Share Your Rare" this Rare Disease Day - sign up for a free cystinosis ribbon temporary tattoo. Spread cystinosis awareness on […]

  • March 2019

  • Mon 11

    Patient Congress

    March 11, 2019 - March 12, 2019
    Hilton at Penns Landing 201 South Christopher Columbus Blvd, Philadelphia, PA

    The PAS Meeting brings together thousands of pediatricians and other health care providers united by a common mission: improve the health and well-being of children worldwide. The Patient Congress is […]

  • April 2019

  • Sat 27

    Pediatric Academic Societies (PAS) Annual Meeting

    Featured April 27, 2019 - April 30, 2019
    Baltimore Convention Center

    The PAS Meeting brings together thousands of pediatricians and other health care providers united by a common mission: improve the health and well-being of children worldwide. Every one of the top 10 children’s hospitals support the Pediatric Academic Societies (PAS) Meeting as the CRN has for years. We look forward to working with the providers […]

  • May 2019

  • Sat 4

    2nd Annual 57 Miles for Cystinosis

    May 4, 2019 @ 12:00 pm - May 5, 2019 @ 12:00 pm
    Sussex Central High School 26026 Patriots Way, Georgetown, DE, United States
  • Tue 7

    Cystinosis Awareness Day 2019

    May 7, 2019
  • Previous Events
  • Today
  • Next Events
  • Google Calendar
  • iCalendar
  • Outlook 365
  • Outlook Live
  • Export .ics file
  • Export Outlook .ics file

P.O. Box 702
Lake Forest, IL 60045 USA

Privacy Policy

Contact Us

847-735-0471

info@cystinosis.org

Sign Up for Our Newsletter

Sign up
Copyright © 2026 Cystinosis Research Network Non profit websites by Elevation