Events

List of events in Photo View

• Rare Disease Day

  Feb 28

  Rare Disease Day

  All day
• Patient Congress

  Mar 11

  Patient Congress

  March 11, 2019 - March 12, 2019
• Pediatric Academic Societies (PAS) Annual Meeting

  Apr 27

  Pediatric Academic Societies (PAS) Annual Meeting

  Featured April 27, 2019 - April 30, 2019
• 2nd Annual 57 Miles for Cystinosis

  May 4

  2nd Annual 57 Miles for Cystinosis

  May 4, 2019 @ 12:00 pm - May 5, 2019 @ 12:00 pm
• Cystinosis Awareness Day 2019

  May 7

  Cystinosis Awareness Day 2019

  All day
• 2019 CRN Family Conference

  Jul 18

  2019 CRN Family Conference

  Featured July 18, 2019 - July 20, 2019
• Seed-Balls for Cystinosis

  Sep 9

  Seed-Balls for Cystinosis

  All day
• Global Genes: Rare Patient Advocacy Summit

  Sep 18

  Global Genes: Rare Patient Advocacy Summit

  September 18, 2019 - September 20, 2019
• Community Advisory Board (CAB) Meeting

  Nov 1

  Community Advisory Board (CAB) Meeting

  November 1, 2019 - November 3, 2019
• American Society of Nephrology – Kidney Week

  Nov 5

  American Society of Nephrology – Kidney Week

  November 5, 2019 - November 10, 2019