Events

List of events in Photo View

• Cystinosis Symposium: A Rare Disease Model for Comprehensive Care

  May 31

  Cystinosis Symposium: A Rare Disease Model for Comprehensive Care

  7:45 am - 7:15 pm

  $50
• School Prep + Cystinosis (virtual)

  Jul 22

  School Prep + Cystinosis (virtual)

  7:00 pm - 8:30 pm
• Cystinosis Network Europe International Conference

  Jul 25

  Cystinosis Network Europe International Conference

  July 25, 2024 - July 27, 2024
• Adult July Meetup – Disability and Cystinosis

  Jul 29

  Adult July Meetup – Disability and Cystinosis

  3:00 pm - 4:00 pm
• Adults August Meetup

  Aug 26

  Adults August Meetup

  6:00 pm - 7:00 pm
• Family Zoom Night – February

  Feb 11

  Family Zoom Night – February

  Virtual Event

  6:30 pm - 7:30 pm
• Rare Disease Day 2025

  Feb 28

  Rare Disease Day 2025

  All day
• Family Zoom Night – March

  Mar 18

  Family Zoom Night – March

  Virtual Event

  7:00 pm - 8:30 pm
• Cystinosis Awareness Day 2025

  May 7

  Cystinosis Awareness Day 2025

  All day
• 2025 CRN Family Conference

  Jul 11

  2025 CRN Family Conference

  July 11, 2025 - July 13, 2025