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10 events found.

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  • 2023 Family Conference – Nashville
    Jul 13
    July 13, 2023 - July 15, 2023

    2023 Family Conference – Nashville

  • Halloween Trivia Night
    Oct 29
    8:30 pm - 9:30 pm

    Halloween Trivia Night

  • Health Insurance – Online Q&A
    Feb 22
    7:00 pm - 8:00 pm

    Health Insurance – Online Q&A

  • Rare Disease Day 2024
    Feb 29
    All day

    Rare Disease Day 2024

  • Family Planning with Cystinosis
    Apr 28
    7:00 pm - 8:00 pm

    Family Planning with Cystinosis

  • Cystinosis Awareness Day – Family Meetup
    May 4
    8:30 am - 4:30 pm

    Cystinosis Awareness Day – Family Meetup

  • Cystinosis Awareness Day
    May 7
    All day

    Cystinosis Awareness Day

  • Adult May Meetup – Mental Wellness
    May 19
    7:00 pm - 8:00 pm

    Adult May Meetup – Mental Wellness

  • Cystinosis Symposium: A Rare Disease Model for Comprehensive Care
    May 31
    7:45 am - 7:15 pm

    Cystinosis Symposium: A Rare Disease Model for Comprehensive Care

    $50
  • School Prep + Cystinosis (virtual)
    Jul 22
    7:00 pm - 8:30 pm

    School Prep + Cystinosis (virtual)

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