Events

List of events in Photo View

• Cystinosis Awareness Day 2019

  May 7

  Cystinosis Awareness Day 2019

  All day
• 2019 CRN Family Conference

  Jul 18

  2019 CRN Family Conference

  Featured July 18, 2019 - July 20, 2019
• Seed-Balls for Cystinosis

  Sep 9

  Seed-Balls for Cystinosis

  All day
• Global Genes: Rare Patient Advocacy Summit

  Sep 18

  Global Genes: Rare Patient Advocacy Summit

  September 18, 2019 - September 20, 2019
• Community Advisory Board (CAB) Meeting

  Nov 1

  Community Advisory Board (CAB) Meeting

  November 1, 2019 - November 3, 2019
• American Society of Nephrology – Kidney Week

  Nov 5

  American Society of Nephrology – Kidney Week

  November 5, 2019 - November 10, 2019
• Giving Tuesday

  Dec 3

  Giving Tuesday

  All day
• Podcast: Staying Positive while living with Cystinosis

  Feb 29

  Podcast: Staying Positive while living with Cystinosis

  All day
• Cystinosis Sessions: Coronavirus, Medication

  Mar 21

  Cystinosis Sessions: Coronavirus, Medication

  4:00 pm - 5:30 pm
• National Kidney Foundation (NKF) Spring Clinical Meeting

  Mar 25

  National Kidney Foundation (NKF) Spring Clinical Meeting

  March 25, 2020 - March 29, 2020