Week of Events
LLLFF Virtual 5K
On the one year anniversary of Laura McGinnis’ passing, the Live Like Laura Fun Fund (LLLFF) was launched. Laura lived life in pursuit of adventure, making memories every step of the way. We'd like to keep her spirit alive by fulfilling as many "fun" requests for the cystinosis community as possible. To grow our funding, we are […]
Sunday, November 1, 2020
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November 1, 2020 -Mulligans Fore Morgan
Mulligans Fore Morgan
Join us for our first Mulligans Fore Morgan event at TopGolf in Cleveland on Sunday, November 1st at 11:00 AM. Registration is $75 per player for 3 hours of unlimited play. Each golf bay will hold teams of 6. An “All-American” lunch is included. Guests will pay individually for alcoholic beverages. 2020 has brought […]
Monday, November 2, 2020
No events on this day.
Tuesday, November 3, 2020
No events on this day.
Wednesday, November 4, 2020
No events on this day.
Thursday, November 5, 2020
No events on this day.
Friday, November 6, 2020
No events on this day.
Saturday, November 7, 2020
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November 7, 2020 -Cystinosis Sessions: Diet & Nutrition
Cystinosis Sessions: Diet & Nutrition
Join the Adult Leadership Advisory Board (ALAB) for the Cystinosis Sessions video conference series - LIVE- on Saturday, November 7th at 4:00 pm ET. The session will focus on Diet Nutrition Regional food favorites Join Zoom Meeting https://zoom.us/j/2663523786 Meeting ID: 266 352 3786 Here are instructions to help with downloading Zoom. We recommend completing these […]