Change is a natural part of progress— and this shift comes directly in response to valuable feedback from the adult cystinosis community.
After thoughtful consideration, the Adult Leadership Advisory Board (ALAB) has been formally dissolved. We want to express our deepest gratitude to every individual who contributed their time, insight, and passion to advancing ALAB’s mission. Your efforts have helped lay the foundation for what comes next.
Please follow along with the CRN as we continue to find impactful ways to support the entire community from diagnosis into adulthood.