We are ringing in the new year with three new volunteers who will serve as Directors on the CRN...
read moreYouth to Adult Transition Part 2- Q &A Panel with Adults Living with Cystinosis Part two of the youth...
read moreYouth to Adult Transition Part 1- Discussion with Medical Professionals The third podcast from the ALAB will focus on...
read moreWelcome to our podcast series – Cystinosis Rare: A Journey into the Unknown. Lead by the Adult Leadership Advisory...
read moreThe great givers in my life are my family. I was born with a rare kidney disease known within...
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