The Cystinosis Research Network (CRN) is pleased to welcome two newly appointed leaders whose professional expertise, lived experience, and shared commitment to service will further strengthen the organization’s mission: Frank Re, Treasurer, and Hannah K. Creel, Director.
Together, Frank and Hannah bring complementary perspectives that reflect CRN’s core values of integrity, accountability, compassion, and community-centered leadership.
Frank Re, Treasurer
Frank Re is an LPL Financial Advisor who has built a steady and respected career grounded in fiduciary responsibility and client service. Frank is a graduate of the University of Cincinnati’s Lindner College of Business, earning his Bachelor of Business Administration in Finance.
Frank was introduced to the Cystinosis Research Network through his local community and developed a deep personal connection to CRN’s mission after learning about Elenor Dicks’ cystinosis journey. Witnessing her strength and resilience left a lasting impression, inspiring Frank to volunteer his skill set to the CRN to support other families affected by cystinosis.
As Treasurer, Frank is grateful for the opportunity to serve CRN and is committed to advancing the organization’s mission with financial transparency, thoughtful oversight, and a strong sense of responsibility to the community it serves.
Hannah Creel, Director
Many in the CRN community had the pleasure of meeting Hannah Creel during the 2025 Grand Rapids Family Conference, where she shared her empathy and training via music therapy sessions – often accompanied by her lovable, four-legged companion (Hope). Hannah lives with cystinosis and brings both professional expertise and lived experience to her role as a newly appointed Director on the CRN Board.
Hannah is a licensed music educator and music therapy student dedicated to making music accessible, meaningful, and empowering for individuals of all abilities. She earned her Bachelor’s degree in Music Education from Samford University with a vocal and choral concentration and is currently pursuing board certification in music therapy through the University of Alabama’s Equivalency Program.
Her professional experience spans work with individuals with intellectual and developmental disabilities, autism spectrum disorder, dementia, and those receiving hospice and palliative care. In addition, Hannah teaches music at a school specializing in education for children with learning differences, including dyslexia, dysgraphia, dyscalculia, and ADHD.
Hannah’s clinical, educational, and research interests focus on the role of music therapy in supporting executive function and emotional well-being, particularly for individuals living with chronic health conditions. She is deeply passionate about bridging clinical practice, research, and music education to advocate for inclusive, person-centered care – ensuring that music remains a lifelong tool for self-expression, emotional regulation, and connection.
Looking Ahead
CRN is honored to welcome Frank and Hannah to the Board. Their leadership, dedication, and perspectives will help guide the organization as it continues to support families, advance research, and amplify the voices of those living with cystinosis.
We are grateful for their willingness to serve and look forward to the impact they will make.