Following much consideration, Cystinosis Network Europe (CNE) and Cystinosis Ireland have decided to cancel the in-person International Cystinosis Conference planned for Dublin in July 2020 due the ongoing situation with COVID-19.
The International Cystinosis Family Conference is now taking place online!
On April 25th from 7am to 3pm ET you will have access to this free event. Available in you own home anywhere in the world, you can now watch cystinosis world experts (with translation) presenting the latest information on managing cystinosis; educational issues; bones and muscles; eyes and possible new treatments; kidneys – pre and post transplant and keeping well; the latest research in gene therapy and other new treatments; pregnancy and male fertility; the impact of COVID-19; and maintaining your mental health.
Confirmed speakers include Prof Elena Levtchenko (Chair), Prof Atif Awan, Dr Rachel Bishop, Prof Don Cairns, Dr Anuj Chauhan, Dr Stephanie Cherqui, Prof Paul Goodyer, Prof Paul Grimm, Dr Patrick Harrison, Prof Craig Langman, Dr Herbie Newell, Dr Joyce Senior, and more.
Register Now. To secure your place and notify the group of translation preferences.
Cystinosis Network Europe (CNE) which comprises members from patient organizations across Europe and further afield. Eight European organisations come together to support people with cystinosis and promote research and form a network. We have a number of projects ongoing to support people living with cystinosis and their families; an international conference every two years; and the development of a Community Advisory Board in Cystinosis, with the support of EURORDIS.