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Cystinosis Sessions: January Video Call

January 2 @ 4:00 pm - 5:30 pm

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All are invited to join as the Adult Leadership Advisory Board hosts our live January video call. This session will touch on the battles and victories associated with cystinosis. Everyone is welcome.

Topics include but are not limited to:

  • Difficulties coping during COVID and school
  • Tension between parents, siblings and children
  • ALAB experiences with parental relationships

Join Zoom Meeting
https://zoom.us/j/2663523786
Meeting ID: 266 352 3786

Here are instructions to help with downloading Zoom. We recommend completing these steps prior to the call.

  • Secure access to a mobile device (PC, Apple, Android), desktop or laptop computer
  • Ensure reliable internet connection
  • Download Zoom Cloud Meetings here or through your device’s app store
  • Click on the link https://zoom.us/j/2663523786
  • Have the Meeting ID ready: 266 352 3786. If you use the link provided, the meeting ID is not needed.

Add the meeting to your calendar by clicking one of the buttons below. We hope to see you then!