Rare Disease Day 2023

February 28, 2023 is Rare Disease Day. A movement created by Eurordis, Rare Disease Day unites an international community and promotes progress for all those affected. Share your cystinosis story […]

Cystinosis Awareness Day

On May 7, 2023 the cystinosis community will come together in honor of Cystinosis Awareness Day. Now in it's sixth year, Cystinosis Awareness Day is a global effort to raise funds and educate the general population about this disease. Follow us for more information leading up to the event. If you would like to volunteer […]