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May 2021

Cystinosis Awareness Day – 2021

May 7

Check back. Details to be announced soon.

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Miles for Moose

May 8 @ 8:00 am - 8:00 pm
Thompson Park Pavilion (Family Gathering Site), 1 Thompson Park
Watertown, NY 13601 United States
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Support the first annual Miles for Moose fundraiser.

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August 2021

CRN Golf Tournament: Myrtle Beach

August 7 @ 7:00 am - 2:00 pm
Myrtle Beach National Golf Club, 4900 National Drive
Myrtle Beach, SC 29779 United States
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The Myrtle Beach National Golf Club is hosting a golf tournament benefitting the Cystinosis Research Network on Saturday, August 7th. If interested in attending or making a donation, please click here.

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