Name: 2027 CRN Family Conference
Start: 2027-07-22T00:00:00+00:00
End: 2027-07-24T23:59:59+00:00
Location: Charlotte Marriott City Center

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December 2026
December Zoom Night- Navigating Rare During the Holidays

December 8 @ 7:00 pm - 8:00 pm

Zoom

Virtual Event

Join us on Tuesday, December 8th for a Cystinosis Zoom Night. This is a welcome space open to everyone impacted by cystinosis. Our primary topic is Navigating a Rare Disease During the Holidays. We’ll talk about travel, planning when away from typical routines, stress, added social gatherings, and anything that is on your mind. […]
July 2027
2027 CRN Family Conference

July 22, 2027 - July 24, 2027

Charlotte Marriott City Center 100 West Trade Street, Charlotte, NC, United States

Join us in the heart of Uptown Charlotte. CRN Family Conferences draw some of the largest gatherings of cystinosis families in the world. The weekend-long agenda creates a space for connection, learning, and shared experience for each member of the family. Save the dates! To stay informed about registration, scholarships, and updates, email info@cystinosis.org or […]

December 2026

July 2027