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Family and friends within driving distance of Jacksonville, Florida, do not want to miss this event! Open to those living with cystinosis and their loved ones, the 2026 CRN Regional […]
$20
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1 event,Join the Cystinosis Awareness Day Movement! Honor our 2,000+ warriors in the most meaningful way to you. Let’s educate, raise awareness and raise funds. May 7th marks the 9th Annual Cystinosis Awareness Day (CAD). It started as a reference to the 57kb deletion in the CTNS gene, the most common genetic cause of nephropathic […] |
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