2026 CRN Regional Family Meetup
Family and friends within driving distance of Jacksonville, Florida, do not want to miss this event! Open to those living with cystinosis and their loved ones, the 2026 CRN Regional […]
$20
4 events found.
Events
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Hyatt Place St Johns Town Center 4742 Town Center Parkway, Jacksonville, FL, United States
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Cystinosis Awareness Day 2026
This year marks the 9th Annual Cystinosis Awareness Day. Inspired by the 57kb deletion in the CTNS gene, the most common cause of nephropathic cystinosis, the day has grown into a global moment of recognition, awareness, and action. Join us in answering... What's your 57? Ways to participate: 57 voices What’s your 57? The reason […]
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2026 Cystinosis Network Europe International Conference
Royal Marine Hotel, Dun Laoghaire Dublin, IrelandCystinosis Ireland hosts the Cystinosis Network Europe's International Conference on July 3, 2026. The Dublin event offers scientific and family sessions, child care, time for socialization and translation for seven […]
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2027 CRN Family Conference
Charlotte Marriott City Center 100 West Trade Street, Charlotte, NC, United StatesJoin us in the heart of Uptown Charlotte. CRN Family Conferences draw some of the largest gatherings of cystinosis families in the world. The weekend-long agenda creates a space for […]
