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6 events found.

adults with cystinosis

  1. Events
  2. adults with cystinosis

Events

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  • May 2020

  • Sat 2

    Live Video Conference: Dependence, Education & Employment

    May 2, 2020 @ 4:00 pm - 5:30 pm

    Join the LIVE video conference session on May 2nd!

  • Thu 7

    Podcast Discussion: Coping with Loss & Grief

    May 7, 2020

    Tune into the ALAB's Podcast series as we discuss how to cope with loss and grief.

  • August 2020

  • Sat 1

    Cystinosis Sessions: Exercise

    August 1, 2020 @ 12:00 pm - 1:30 pm

    The Cystinosis Sessions live video series continues on Saturday, August 1st from 12:00pm - 1:30pm ET. The Adult Leadership Advisory Board (ALAB) will lead the discussion open to all community members. Cystinosis Sessions: Exercise Importance of exercise Types of exercise Strength training Aerobics Stretching Balance training Moderate vs Intense exercise And more Please download the […]

  • November 2020

  • Sat 7

    Cystinosis Sessions: Diet & Nutrition

    November 7, 2020 @ 4:00 pm - 5:00 pm

    Join the Adult Leadership Advisory Board (ALAB) for the Cystinosis Sessions video conference series - LIVE- on Saturday, November 7th at 4:00 pm ET. The session will focus on Diet […]

  • January 2022

  • Sat 8

    Cystinosis Sessions: January Video Call

    January 8, 2022 @ 4:00 pm - 5:00 pm

    Saturday, January 8th at 4:00pm ET, join the Adult Leadership Advisory Board (ALAB). Discuss mental toughness and ways to stay positive with others within the cystinosis community. Please note: this is not just for adults living with cystinosis, everyone interested is invited to attend. To join, click: https://zoom.us/j/2663523786 Meeting ID: 266 352 3786 Here are […]

  • May 2024

  • Sun 19

    Adult May Meetup – Mental Wellness

    May 19, 2024 @ 7:00 pm - 8:00 pm

    May is Mental Health Awareness Month. Join the Adult Leadership Advisory Board to discuss the importance of mental wellness. Special guests include AJ Altman (Music Therapist) and Amanda Harmon (PhD college professor). For the Zoom link, please register for free using this link. Event is May 19 at 7p ET. We hope to see you […]

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