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  • July 2024

  • Mon 29
    July 29, 2024 @ 3:00 pm - 4:00 pm

    Adult July Meetup – Disability and Cystinosis

    Virtual

    For Disability Pride Month, the Adult Leadership Advisory Board is hosting a Zoom call to discuss living with cystinosis and disability. Their special guest is Hannah Creel, a cystinosis warrior, advocate and rare disease ally. Registration is free to attend the event on July 29 at 3pm ET/2pm CT.

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