7 events found.
Week of Events
Cystinosis Awareness Day 2026
Join the Cystinosis Awareness Day Movement! Honor our 2,000 warriors in the most meaningful way to you. Let’s educate, raise awareness and raise funds. The 9th Annual Cystinosis Awareness Day (CAD) is May 7th or 5/7. 57 refers to the 57kb deletion in the CTNS gene, the most common genetic cause of nephropathic cystinosis. #WhatIsYour57? […]