care

Name: Caregivers Connect: Virtual Meetup
Start: 2020-09-19T17:00:00+00:00
End: 2020-09-19T18:30:00+00:00

February 2020
February 29, 2020

Podcast: Staying Positive while living with Cystinosis

Welcome to our podcast series - Cystinosis Rare: A Journey into the Unknown. Lead by the Adult Leadership Advisory Board (ALAB), this series will focus on issues specific to our rare disease. The initial podcast episode launches on Rare Disease Day - February 29, 2020. This episode focuses on positive aspects and inspiring stories of […]
September 2020
September 19, 2020 @ 5:00 pm - 6:30 pm

Caregivers Connect: Virtual Meetup

Caregivers of children with cystinosis under 18 years old are invited. Join us for a video conference to connect with other caregivers. This is a free networking opportunity. Register at https://us02web.zoom.us/meeting/register/tZUpde2tqj8uH9yGl5nmGG6v1TvprXaLgtOV. FREE welcome kits - limited availability. We hope to see you there!