care

Name: Caregivers Connect: Virtual Meetup
Start: 2020-09-19T17:00:00+00:00
End: 2020-09-19T18:30:00+00:00

February 2020
Podcast: Staying Positive while living with Cystinosis

February 29, 2020

Welcome to our podcast series - Cystinosis Rare: A Journey into the Unknown. Lead by the Adult Leadership Advisory Board (ALAB), this series will focus on issues specific to our […]
September 2020
Caregivers Connect: Virtual Meetup

September 19, 2020 @ 5:00 pm - 6:30 pm

Caregivers of children with cystinosis under 18 years old are invited. Join us for a video conference to connect with other caregivers. This is a free networking opportunity. Register at https://us02web.zoom.us/meeting/register/tZUpde2tqj8uH9yGl5nmGG6v1TvprXaLgtOV. FREE welcome kits - limited availability. We hope to see you there!