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  • July 2020

  • Sat 11
    July 11, 2020 @ 4:00 pm - 5:30 pm

    Cystinosis Sessions: Mental Health

    The forth live video conference hosted by the Adult Leadership Advisory Board (ALAB) will discuss Mental Health, Anxiety, Depression, and Coping. Our featured guest is Maya Doyle, MSW, PhD, LCSW. We look forward to seeing you at 4pm ET on July 11th. Join Zoom Meeting https://zoom.us/j/2663523786 Meeting ID: 266 352 3786 Zoom Meetings Instructions Desktop, […]

  • September 2020

  • Sat 19
    September 19, 2020 @ 5:00 pm - 6:30 pm

    Caregivers Connect: Virtual Meetup

    Caregivers of children with cystinosis under 18 years old are invited. Join us for a video conference to connect with other caregivers. This is a free networking opportunity. Register at https://us02web.zoom.us/meeting/register/tZUpde2tqj8uH9yGl5nmGG6v1TvprXaLgtOV. FREE welcome kits - limited availability. We hope to see you there!

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