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2 events found.

Cincinnati

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  • January 2022

  • Sun 16
    Featured January 16, 2022 @ 1:00 pm - 6:00 pm

    A Benefit for Elle

    The Hilltop 950 Pavillion Street, Cincinnati, OH, United States

    Join The Hilltop and Dicks Family for a fundraiser to benefit sweet Elle. Elle was diagnosed with cystinosis and her family, friends and community have supported her every step of the way. Her father is Jon Dicks, President of the Cystinosis Research Network. You can read about the first few years of her journey as […]

  • May 2024

  • Sat 4
    May 4, 2024 @ 8:30 am - 4:30 pm

    Cystinosis Awareness Day – Family Meetup

    Cincinnati Marriott RiverCenter 10 W Rivercenter Blvd, Covington, Kentucky, United States

    See you in Cincinnati, Ohio! On May 4th, we are gathering for an in-person meet-up at the Cincinnati Marriott River Center. Join us for a day of connection, education, and celebration commemorating the 7th Annual Cystinosis Awareness Day. Registration is required and is now closed. Please contact Chelsea with questions at chelseam@cystinosis.org. Draft Agenda  8:30a […]

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