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Cystinosis Research Network

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  • May 2026

  • Sat 2

    2026 CRN Regional Family Meetup

    May 2 @ 8:30 am - 5:00 pm
    Hyatt Place St Johns Town Center 4742 Town Center Parkway, Jacksonville, FL, United States

    Family and friends within driving distance of Jacksonville, Florida, do not want to miss this event! Open to those living with cystinosis and their loved ones, the 2026 CRN Regional Family Meetup is an intimate gathering designed to connect, inform and strengthen our cystinosis community. Hosted by Chelsea Meschke, LMSW, CRN VP of Family Support […]

    $20
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