For HCPs Donate
Logo
  • About Cystinosis
    • Cystinosis 101
    • Newly Diagnosed
    • Dialysis & Transplant
  • Support & Resources
    • Managing Cystinosis
    • Support Groups
    • Doctors in Your Area
    • Families in Your Area
    • Publications & Guides
    • Education
    • Special Programming
      • Live Like Laura Fun Fund
      • Cystinosis Memorial Fund
      • Care Package Program
    • Scholarships
  • Research
    • Grants Awarded
    • Updates
    • Participation
  • About Us
    • Leadership
    • Financials
    • By Laws
    • Contact Us
  • Our Impact
    • Inspirational Stories
  • How to Help
    • Donate
    • Face Mask from the CRN
    • Start a Fundraiser
  • News & Events
    • Events Calendar
    • Family Conference
    • Newsletter
    • Press Kit
4 events found.

dialogue

  1. Events
  2. dialogue

Events Search and Views Navigation

Event Views Navigation

  • List
  • Month
  • Day
  • Photo
  • Week
  • Map
Today
  • May 2020

  • Sat 2
    May 2, 2020 @ 4:00 pm - 5:30 pm

    Live Video Conference: Dependence, Education & Employment

    Join the LIVE video conference session on May 2nd!

  • May 2021

  • Sat 1
    May 1, 2021 @ 4:00 pm - 5:00 pm

    Cystinosis Session: May Video Call

    The Adult Leadership Advisory Board (ALAB) is hosting a Zoom video call on May 1st at 4pm ET. The Cystinosis Session is open to all who would like to engage in and/or listen to conversation around the following topics: Caregivers. What happens when they pass? Wills Employment and More Join Zoom Meeting https://zoom.us/j/2663523786 Meeting ID: […]

  • June 2021

  • Sat 5
    June 5, 2021 @ 4:00 pm - 5:00 pm

    Cystinosis Sessions: June Video Call

    The Adult Leadership Advisory Board (ALAB) is hosting a Zoom video call on June 5th at 4pm ET. The conversation is open to the entire cystinosis community. This month's topic is stress. Let's discuss what we do for relief and ideas that may help in the future. To join, click: https://zoom.us/j/2663523786 Meeting ID: 266 352 […]

  • July 2021

  • Sat 10
    July 10, 2021 @ 4:00 pm - 5:00 pm

    Cystinosis Sessions: July Video Call

    The Adult Leadership Advisory Board (ALAB) is hosting a Zoom video call on July 10th at 4pm ET. TOPICS  The conversation topics include returning to the workplace after COVID-19 and the CRN Virtual Conference (held July 16-18, 2021).  To join, click: https://zoom.us/j/2663523786 Meeting ID: 266 352 3786 Here are instructions to help with downloading Zoom. […]

  • Today
  • Next Events
  • Google Calendar
  • iCalendar
  • Outlook 365
  • Outlook Live
  • Export .ics file
  • Export Outlook .ics file

P.O. Box 702
Lake Forest, IL 60045 USA

Privacy Policy

Contact Us

847-735-0471

info@cystinosis.org

Sign Up for Our Newsletter

Sign up
Copyright © 2022 Cystinosis Research Network Non profit websites by Elevation