For HCPs Donate
Logo
  • About Cystinosis
    • Cystinosis 101
    • Newly Diagnosed
    • Dialysis & Transplant
  • Support & Resources
    • Managing Cystinosis
    • Support Groups
    • Doctors in Your Area
    • Families in Your Area
    • Publications & Guides
    • Education
    • Special Programming
      • Live Like Laura Fun Fund
      • Cystinosis Memorial Fund
      • Care Package Program
    • Scholarships
  • Research
    • Grants Awarded
    • Updates
    • Participation
  • About Us
    • Leadership
    • Financials
    • By Laws
    • Contact Us
  • Our Impact
    • Inspirational Stories
  • How to Help
    • Donate
    • Face Mask from the CRN
    • Start a Fundraiser
  • News & Events
    • Events Calendar
    • Family Conference
    • Newsletter
    • Press Kit
2 events found.

donation

  1. Events
  2. donation

Events

Events Search and Views Navigation

Event Views Navigation

  • List
  • Month
  • Day
  • Photo
  • Week
  • Map
Today
  • February 2021

  • Sun 28

    Rare Disease Day 2021

    February 28, 2021

    The goal of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. This year's Rare Disease Day theme is : Rare is many. Rare is strong. Rare is proud. This theme is our call to action. Let’s elevate our voices as a united rare disease community. […]

  • May 2024

  • Tue 7

    Cystinosis Awareness Day

    May 7, 2024

    Join us on and leading up to May 7th to promote cystinosis awareness, education and fundraising efforts. Our 7th annual awareness day campaign focuses on #CystinosisStereotypes with 3 ways go participate: share, create and/or donate. Share. Each day our community wakes up and challenges cystinosis stereotypes. Over the next few weeks we will be releasing […]

  • Today
  • Next Events
  • Google Calendar
  • iCalendar
  • Outlook 365
  • Outlook Live
  • Export .ics file
  • Export Outlook .ics file

P.O. Box 702
Lake Forest, IL 60045 USA

Privacy Policy

Contact Us

847-735-0471

info@cystinosis.org

Sign Up for Our Newsletter

Sign up
Copyright © 2026 Cystinosis Research Network Non profit websites by Elevation