donations

Name: 2nd Annual SC Golf Fundraiser
Start: 2022-06-18T09:00:00+00:00
End: 2022-06-18T14:00:00+00:00
Location: Wild Wing Avocet Golf Course

List
Month
Day
Photo
Week
Map

September 2019
September 9, 2019

Seed-Balls for Cystinosis

(Left) Carter'(s last boat ride before G-J tube insertion. (Right) Look who turned 2! Over the last few years, Carter's family has taken a strong interest in monarch butterflies. Post diagnosis, Grandmom (Carrie) knew she wanted to create an event to honor his resilient spirit. To celebrate Carter's second birthday and new found love for […]
May 2020
May 2, 2020

57 Miles for Cystinosis

DE, United States
June 2022
Featured June 18, 2022 @ 9:00 am - 2:00 pm

2nd Annual SC Golf Fundraiser

Wild Wing Avocet Golf Course 1000 Wild Wing Boulevard, Conway, South Carolina

Gail Potts and her South Carolina team are back at it! After a successful inaugural event last summer, Gail continues to honor her daughter Deanna’s legacy with a golf fundraiser to benefit the Cystinosis Research Network (CRN). Proceeds from the event will support research, family support and education for those impacted by cystinosis. This […]

$65

September 2019

May 2020

June 2022