Seed-Balls for Cystinosis
(Left) Carter'(s last boat ride before G-J tube insertion. (Right) Look who turned 2! Over the last few years, Carter's family has taken a strong interest in monarch butterflies. Post […]
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57 Miles for Cystinosis
DE, United States -
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2nd Annual SC Golf Fundraiser
FeaturedWild Wing Avocet Golf Course 1000 Wild Wing Boulevard, Conway, South CarolinaGail Potts and her South Carolina team are back at it! After a successful inaugural event last summer, Gail continues to honor her daughter Deanna’s legacy with a golf fundraiser to benefit the Cystinosis Research Network (CRN). Proceeds from the event will support research, family support and education for those impacted by cystinosis. This […]
$65
