For HCPs Donate
Logo
  • About Cystinosis
    • Cystinosis 101
    • Newly Diagnosed
    • Dialysis & Transplant
  • Support & Resources
    • Managing Cystinosis
    • Support Groups
    • Doctors in Your Area
    • Families in Your Area
    • Publications & Guides
    • Education
    • Special Programming
      • Live Like Laura Fun Fund
      • Cystinosis Memorial Fund
      • Care Package Program
    • Scholarships
  • Research
    • Grants Awarded
    • Updates
    • Participation
  • About Us
    • Leadership
    • Financials
    • By Laws
    • Contact Us
  • Our Impact
    • Inspirational Stories
  • How to Help
    • Donate
    • Face Mask from the CRN
    • Start a Fundraiser
  • News & Events
    • Events Calendar
    • Family Conference
    • Newsletter
    • Press Kit
3 events found.

donations

  1. Events
  2. donations

Events

Events Search and Views Navigation

Event Views Navigation

  • List
  • Month
  • Day
  • Photo
  • Week
  • Map
Today
  • September 2019

  • Mon 9

    Seed-Balls for Cystinosis

    September 9, 2019

    (Left) Carter'(s last boat ride before G-J tube insertion. (Right) Look who turned 2! Over the last few years, Carter's family has taken a strong interest in monarch butterflies. Post diagnosis, Grandmom (Carrie) knew she wanted to create an event to honor his resilient spirit. To celebrate Carter's second birthday and new found love for […]

  • May 2020

  • Sat 2

    57 Miles for Cystinosis

    May 2, 2020
    DE, United States
  • June 2022

  • Sat 18

    2nd Annual SC Golf Fundraiser

    Featured June 18, 2022 @ 9:00 am - 2:00 pm
    Wild Wing Avocet Golf Course 1000 Wild Wing Boulevard, Conway, South Carolina

    Gail Potts and her South Carolina team are back at it! After a successful inaugural event last summer, Gail continues to honor her daughter Deanna’s legacy with a golf fundraiser […]

    $65
  • Today
  • Next Events
  • Google Calendar
  • iCalendar
  • Outlook 365
  • Outlook Live
  • Export .ics file
  • Export Outlook .ics file

P.O. Box 702
Lake Forest, IL 60045 USA

Privacy Policy

Contact Us

847-735-0471

info@cystinosis.org

Sign Up for Our Newsletter

Sign up
Copyright © 2026 Cystinosis Research Network Non profit websites by Elevation