education

Name: Cystinosis Awareness Day 2026
Start: 2026-05-07T00:00:00+00:00
End: 2026-05-07T23:59:59+00:00

February 2026
February 28, 2026

Rare Disease Day 2026

Taking place on the last day of February, Rare Disease Day is a global movement which aims to promote equity in social opportunities, healthcare, and access to diagnosis and therapies for individuals living with rare diseases. Check back for details on how to be a part of the CRN's Rare Disease Day Campaign to help […]
May 2026
May 7, 2026

Cystinosis Awareness Day 2026

Join the Cystinosis Awareness Day Movement! Honor our 2,000 warriors in the most meaningful way to you. Let’s educate, raise awareness and raise funds. The 9th Annual Cystinosis Awareness Day (CAD) is May 7th or 5/7. 57 refers to the 57kb deletion in the CTNS gene, the most common genetic cause of nephropathic cystinosis. #WhatIsYour57? […]