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4 events found.

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  • May 2020

  • Sat 2
    May 2, 2020 @ 4:00 pm - 5:30 pm

    Live Video Conference: Dependence, Education & Employment

    Join the LIVE video conference session on May 2nd!

  • April 2021

  • Sat 10
    Featured April 10, 2021 @ 12:00 pm - 1:00 pm

    Cystinosis Sessions: April Video Call

    Cystinosis Sessions: April Video Call All are invited to join as the Adult Leadership Advisory Board hosts a live video call on Saturday, April 10th. This "Cystinosis Session" will cover but will not be limited to well being, employment and relationships. Join Zoom Meeting https://zoom.us/j/2663523786 Meeting ID: 266 352 3786 Here are instructions to help […]

  • May 2021

  • Sat 1
    May 1, 2021 @ 4:00 pm - 5:00 pm

    Cystinosis Session: May Video Call

    The Adult Leadership Advisory Board (ALAB) is hosting a Zoom video call on May 1st at 4pm ET. The Cystinosis Session is open to all who would like to engage in and/or listen to conversation around the following topics: Caregivers. What happens when they pass? Wills Employment and More Join Zoom Meeting https://zoom.us/j/2663523786 Meeting ID: […]

  • July 2021

  • Sat 10
    July 10, 2021 @ 4:00 pm - 5:00 pm

    Cystinosis Sessions: July Video Call

    The Adult Leadership Advisory Board (ALAB) is hosting a Zoom video call on July 10th at 4pm ET. TOPICS  The conversation topics include returning to the workplace after COVID-19 and the CRN Virtual Conference (held July 16-18, 2021).  To join, click: https://zoom.us/j/2663523786 Meeting ID: 266 352 3786 Here are instructions to help with downloading Zoom. […]

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