event

Cystinosis Awareness Day – 3rd Annual

May 7

All day

Cystinosis Awareness Day – 3rd Annual
Caregivers Connect: Virtual Meetup

Sep 19

5:00 pm - 6:30 pm

Caregivers Connect: Virtual Meetup
Miles for Moose 5.7 Mile Virtual Walk/Run

May 1

May 1, 2021 - May 31, 2021

Miles for Moose 5.7 Mile Virtual Walk/Run
2021 CRN Summer Online Conference

Jul 16

Featured July 16, 2021 @ 6:00 pm - July 18, 2021 @ 3:45 pm

2021 CRN Summer Online Conference
CRN Golf Tournament: Myrtle Beach

Aug 14

Featured 9:00 am - 2:45 pm

CRN Golf Tournament: Myrtle Beach

$60
Rare Disease Day 2022

Feb 28

Featured All day

Rare Disease Day 2022
CNE International Conference

Jul 7

Featured July 7, 2022 - July 10, 2022

CNE International Conference
Cystinosis Awareness Day – Family Meetup

May 4

8:30 am - 4:30 pm

Cystinosis Awareness Day – Family Meetup
Family Zoom Night – February

Feb 11

Virtual Event

6:30 pm - 7:30 pm

Family Zoom Night – February
2025 CRN Family Conference

Jul 11

July 11, 2025 - July 13, 2025

2025 CRN Family Conference