event

Cystinosis Awareness Day – 3rd Annual

May 7

Cystinosis Awareness Day – 3rd Annual

All day
Caregivers Connect: Virtual Meetup

Sep 19

Caregivers Connect: Virtual Meetup

5:00 pm - 6:30 pm
Miles for Moose 5.7 Mile Virtual Walk/Run

May 1

Miles for Moose 5.7 Mile Virtual Walk/Run

May 1, 2021 - May 31, 2021
2021 CRN Summer Online Conference

Jul 16

2021 CRN Summer Online Conference

Featured July 16, 2021 @ 6:00 pm - July 18, 2021 @ 3:45 pm
CRN Golf Tournament: Myrtle Beach

Aug 14

CRN Golf Tournament: Myrtle Beach

Featured 9:00 am - 2:45 pm

$60
Rare Disease Day 2022

Feb 28

Rare Disease Day 2022

Featured All day
CNE International Conference

Jul 7

CNE International Conference

Featured July 7, 2022 - July 10, 2022
Cystinosis Awareness Day – Family Meetup

May 4

Cystinosis Awareness Day – Family Meetup

8:30 am - 4:30 pm
Family Zoom Night – February

Feb 11

Family Zoom Night – February

Virtual Event

6:30 pm - 7:30 pm
2025 CRN Family Conference

Jul 11

2025 CRN Family Conference

July 11, 2025 - July 13, 2025