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  • November 2020

  • Sun 1
    November 1, 2020

    LLLFF Virtual 5K

    On the one year anniversary of Laura McGinnis’ passing, the Live Like Laura Fun Fund (LLLFF) was launched. Laura lived life in pursuit of adventure, making memories every step of the way. We'd like to keep her spirit alive by fulfilling as many "fun" requests for the cystinosis community as possible. To grow our funding, we are […]

  • August 2021

  • Sat 14
    Featured August 14, 2021 @ 9:00 am - 2:45 pm

    CRN Golf Tournament: Myrtle Beach

    Myrtle Beach National Golf Club 4900 National Drive, Myrtle Beach, SC, United States

    The Myrtle Beach National Golf Club and Gail Potts are hosting a golf tournament benefitting the Cystinosis Research Network on Saturday, August 14th. Click here to register today or make a donation through this website.

    $60
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