newly diagnosed

Name: Zoom Night – January
Start: 2026-01-15T19:30:00+00:00
End: 2026-01-15T20:30:00+00:00

September 2020
Cystinosis Basics: Virtual Meetups

September 29, 2020 @ 7:00 pm - 8:30 pm

Learn more about the fundamentals of cystinosis during our Cystinosis Basics video meetup. Dr. Larry Greenbaum, Emory School of Medicine is our expert speaker. Join us by registering today at https://us02web.zoom.us/webinar/register/WN_HU0G6SQuR4W_G8mmFr3bog. FREE welcome kits - limited availability. We hope you can join us!
January 2026
Zoom Night – January

January 15 @ 7:30 pm - 8:30 pm

Cystinosis Community Zoom Night Thursday, January 15 at 7:30 PM ET Zoom link: https://us06web.zoom.us/j/88075560653 Join our next Zoom night for an evening of connection and conversation. These calls are open to everyone living with and impacted by cystinosis, however, this call will focus on new/newer diagnosed families. It’s a welcoming space to share experiences, ask […]