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  • December 2020

  • Sat 5
    December 5, 2020 @ 12:00 pm - 1:30 pm

    Cystinosis Sessions:

    Saturday, December 5th at 12:00 pm ET, the Adult Leadership Advisory Board (ALAB) will host a live video conference. This month's topics include the holidays, COVID-19 and eye drops. Join Zoom Meeting https://zoom.us/j/2663523786 Meeting ID: 266 352 3786 Here are instructions to help with downloading Zoom. We recommend completing these steps prior to the call. […]

  • May 2021

  • Sat 1
    May 1, 2021 @ 4:00 pm - 5:00 pm

    Cystinosis Session: May Video Call

    The Adult Leadership Advisory Board (ALAB) is hosting a Zoom video call on May 1st at 4pm ET. The Cystinosis Session is open to all who would like to engage in and/or listen to conversation around the following topics: Caregivers. What happens when they pass? Wills Employment and More Join Zoom Meeting https://zoom.us/j/2663523786 Meeting ID: […]

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