Global Genes: Rare Patient Advocacy Summit
Sheraton San Diego Hotel & Marina 1380 Harbor Island Drive, San Diego, CA, United StatesOn behalf of the cystinosis community, CRN advocates will attend this rare disease summit to absorb information on the latest therapies and research and participate in collaborative workshops. Global Genes has more information on their website and FAQs page. "As the largest gathering of rare disease patients, caregivers, thought leaders and other rare disease stakeholders […]