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  • March 2026

  • Tue 10

    Zoom Night – March

    March 10 @ 7:00 pm - 8:00 pm
    Zoom

    Join us for our March Zoom call, where we’ll be coming together to talk about kidney transplants. For many in the cystinosis community, the journey includes at least one (if not multiple) kidney transplants. This open, supportive conversation will explore life before transplant, dialysis, re-transplantation, and the realities in between. With voices from across the […]

  • May 2026

  • Sat 2

    2026 CRN Regional Family Meetup

    May 2 @ 8:30 am - 5:00 pm
    Hyatt Place St Johns Town Center 4742 Town Center Parkway, Jacksonville, FL, United States

    Family and friends within driving distance of Jacksonville, Florida, do not want to miss this event! Open to those living with cystinosis and their loved ones, the 2026 CRN Regional Family Meetup is an intimate gathering designed to connect, inform and strengthen our cystinosis community. Hosted by Chelsea Meschke, LMSW, CRN VP of Family Support […]

    $20
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