sharing

Name: Family Zoom Night – February
Start: 2025-02-11T18:30:00+00:00
End: 2025-02-11T19:30:00+00:00

March 2020
March 21, 2020 @ 4:00 pm - 5:30 pm

Cystinosis Sessions: Coronavirus, Medication

Join the first video conference session created by the Adult Leadership Advisory Board - Saturday, March 21 at 4pm ET.
January 2022
January 8, 2022 @ 4:00 pm - 5:00 pm

Cystinosis Sessions: January Video Call

Saturday, January 8th at 4:00pm ET, join the Adult Leadership Advisory Board (ALAB). Discuss mental toughness and ways to stay positive with others within the cystinosis community. Please note: this is not just for adults living with cystinosis, everyone interested is invited to attend. To join, click: https://zoom.us/j/2663523786 Meeting ID: 266 352 3786 Here are […]
August 2024
August 26, 2024 @ 6:00 pm - 7:00 pm

Adults August Meetup

The Adult Leadership Advisory Board invites you to join their August meetup on Monday the 26th at 6p ET. This month's topic: Mental Health - Trauma. Special guest is Kerry Heckman, a licensed therapist from Seattle, Washington. Register here to take part in the discussion.
February 2025
February 11 @ 6:30 pm - 7:30 pm

Family Zoom Night – February

Virtual Event

CRN Family Zoom Night All are invited to attend a Family Zoom Night on February 11th. Our goal is to provide the cystinosis community with a safe place to share […]