For HCPs Donate
Logo
  • About Cystinosis
    • Cystinosis 101
    • Newly Diagnosed
    • Dialysis & Transplant
  • Support & Resources
    • Managing Cystinosis
    • Support Groups
    • Doctors in Your Area
    • Families in Your Area
    • Publications & Guides
    • Education
    • Special Programming
      • Live Like Laura Fun Fund
      • Cystinosis Memorial Fund
      • Care Package Program
    • Scholarships
  • Research
    • Grants Awarded
    • Updates
    • Participation
  • About Us
    • Leadership
    • Financials
    • By Laws
    • Contact Us
  • Our Impact
    • Inspirational Stories
  • How to Help
    • Donate
    • Face Mask from the CRN
    • Start a Fundraiser
  • News & Events
    • Events Calendar
    • Family Conference
    • Newsletter
    • Press Kit
1 event found.

VP of Family Support

  1. Events
  2. VP of Family Support

Events Search and Views Navigation

Event Views Navigation

  • List
  • Month
  • Day
  • Photo
  • Week
  • Map
Today
  • January 2026

  • Thu 15
    January 15, 2026 @ 7:30 pm - 8:30 pm

    Zoom Night – January

    Cystinosis Community Zoom Night Thursday, January 15 at 7:30 PM ET Zoom link: https://us06web.zoom.us/j/88075560653 Join our next Zoom night for an evening of connection and conversation. These calls are open to everyone living with and impacted by cystinosis, however, this call will focus on new/newer diagnosed families. It’s a welcoming space to share experiences, ask […]

  • Previous Events
  • Today
  • Google Calendar
  • iCalendar
  • Outlook 365
  • Outlook Live
  • Export .ics file
  • Export Outlook .ics file

P.O. Box 702
Lake Forest, IL 60045 USA

Privacy Policy

Contact Us

847-735-0471

info@cystinosis.org

Sign Up for Our Newsletter

Sign up
Copyright © 2022 Cystinosis Research Network Non profit websites by Elevation