Zoom call

Name: Zoom night – November
Start: 2025-11-18T19:30:00+00:00
End: 2025-11-18T20:30:00+00:00
Location: Zoom

January 2022
January 8, 2022 @ 4:00 pm - 5:00 pm

Cystinosis Sessions: January Video Call

Saturday, January 8th at 4:00pm ET, join the Adult Leadership Advisory Board (ALAB). Discuss mental toughness and ways to stay positive with others within the cystinosis community. Please note: this is not just for adults living with cystinosis, everyone interested is invited to attend. To join, click: https://zoom.us/j/2663523786 Meeting ID: 266 352 3786 Here are […]
November 2025
November 18 @ 7:30 pm - 8:30 pm

Zoom night – November

Zoom

Join our next Zoom night on Tuesday, November 18th. Calls are open to everyone living with and impacted by cystinosis. It is a chance to connect, ask questions, and spend time together. November 18 7:30p ET Zoom link: https://tinyurl.com/7s2datft Our host is Chelsea Meschke, CRN VP of Family Support, licensed social worker, and mom to […]