Week of Events
Rare Disease Day 2021
The goal of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. This year's Rare Disease Day theme is : Rare is many. Rare is strong. Rare is proud. This theme is our call to action. Let’s elevate our voices as a united rare disease community. […]
Sunday, February 28, 2021
No events on this day.
Monday, March 1, 2021
No events on this day.
Tuesday, March 2, 2021
No events on this day.
Wednesday, March 3, 2021
No events on this day.
Thursday, March 4, 2021
No events on this day.
Friday, March 5, 2021
No events on this day.
Saturday, March 6, 2021
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Featured March 6, 2021 -Featured Cystinosis Sessions: March Video Call
Cystinosis Sessions: March Video Call
All are invited to join as the Adult Leadership Advisory Board hosts a live video call on Saturday, March 6th. This "Cystinosis Session" will focus on the topic of relationships. Join Zoom Meeting https://zoom.us/j/2663523786 Meeting ID: 266 352 3786 Here are instructions to help with downloading Zoom. We recommend completing these steps prior to the […]