How is the COVID-19 pandemic impacting our cystinosis community? A survey was created to help answer this question. The...
read moreA letter from Fernanda Copeland, Executive Director, Head Patient Advocacy & Engagement at AVROBIO March 24, 2020 We hope...
read moreJoin the first video conference session created by the Adult Leadership Advisory Board - Saturday, March 21 at 4pm...
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