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May 2021 Cystaran Update

Please click here for the latest updates from Leadiant on the Cystadrops shortage. If you have further questions, please...

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Cystinosis Awareness Day – A Message from Leadiant Biosciences

In honor of Cystinosis Awareness Day – May 7 – Leadiant Biosciences is commemorating this event with a letter...

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New CYSTARAN® Eye Drop Manufacturer Secured

February 12, 2021Dear Cystinosis Community:  We wanted to share an update from Leadiant Biosciences regarding the CYSTARAN® (cysteamine ophthalmic...

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Now Available: CYSTARAN Town Hall Recording

On February 3, 2021, Leadiant and the Cystinosis Research Network held a Town Hall to address the CYSTARAN eye...

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Cystaran Town Hall: Product Shortage 2021 Expectations

Leadiant Biosciences, the distributor of CYSTARAN, is sponsoring a Town Hall meeting on February 3rd. The cystinosis community is...

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Cystinosis Sessions:

Saturday, December 5th at 12:00 pm ET, the Adult Leadership Advisory Board (ALAB) will host a live video conference....

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Update: Cystaran Eye Drop Shortage

As of today, November 12th, AllianceRx Walgreens Prime is unable to fulfill any orders of CYSTARAN. Leadiant’s full announcement...

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New Details Announced: CYSTADROPS U.S. Website Launched

Recordati Rare Diseases Inc., the makers of CYSTADROPS, launched a website to support the launch of the eye treatment...

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CYSTARAN Eye Drop Shortage Anticipated

In a statement from Leadient Biosciences on October 9th, the company announced an availability shortage may impact cystinosis patients...

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Recordati Announces Availability of CYSTADROPS in the U.S.

Beginning September 15, 2020, Recordati Rare Diseases announced the availability of CYSTADROPS across the United States. CYSTADROPS are a...

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