Learn more about gene therapy as it relates to the cystinosis community. Dr. Paul Grimm from from Stanford University...
read moreLet’s have an open discussion on mental health and living with cystinosis. Everyone within the community is invited! Licensed...
read moreLearn more about the fundamentals of cystinosis during our Cystinosis Basics video meetup. Dr. Larry Greenbaum, Emory School of...
read moreCaregivers of children with cystinosis under 18 years old are invited. Join us for a video conference to connect...
read moreWe are going virtual! The CRN is introducing a series of virtual meetups taking place this fall. Available to...
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