meetup

2023 Family Conference – Nashville

The CRN Family Conference is back…and in-person for the summer of 2023. Join us July 13 – July 15...

Learn more about gene therapy as it relates to the cystinosis community. Dr. Paul Grimm from from Stanford University...

Let’s have an open discussion on mental health and living with cystinosis. Everyone within the community is invited! Licensed...

Learn more about the fundamentals of cystinosis during our Cystinosis Basics video meetup. Dr. Larry Greenbaum, Emory School of...

Caregivers of children with cystinosis under 18 years old are invited. Join us for a video conference to connect...

We are going virtual! The CRN is introducing a series of virtual meetups taking place this fall. Available to...