For HCPs Donate

Tag: rare

Search
Generic filters
Exact matches only

How A Rare Diagnosis Impacts A Family

The Dicks Family sat down for a candid conversation with Daniel Levine from Global Genes. During the latest podcast,...

read more

Global Genes: Rare Patient Advocacy Summit

On behalf of the cystinosis community, CRN advocates will attend this rare disease summit to absorb information on the...

read more

Support

Let us help connect you with other individuals/families near you.

Learn More

Inspirational Stories

Our community is small but mighty! Hear about our triumphs.

Read More

Donate

Your contribution funds research for improved treatments, and ultimately, a cure for cystinosis.

Donate