Virtual

Events at this venue

July 2024
July 29, 2024 @ 3:00 pm - 4:00 pm

Adult July Meetup – Disability and Cystinosis

Virtual

For Disability Pride Month, the Adult Leadership Advisory Board is hosting a Zoom call to discuss living with cystinosis and disability. Their special guest is Hannah Creel, a cystinosis warrior, advocate and rare disease ally. Registration is free to attend the event on July 29 at 3pm ET/2pm CT.
April 2024
April 28, 2024 @ 7:00 pm - 8:00 pm

Family Planning with Cystinosis

Virtual

The Adult Leadership Advisory Board introduces the topic of Family Planning with Cystinosis to their monthly meetup series. Are you an adult with cystinosis thinking about having a family? Not sure if you want to adopt or pursue a traditional birth? Join the Zoom conversation to hear from adults with cystinosis who can help […]