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Cystinosis Research Network

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Phone 847-735-0471
Email info@cystinosis.org
Website http://cystinosis.org

Events from this organizer

Today
  • January 2026

  • Thu 15
    January 15, 2026 @ 7:30 pm - 8:30 pm

    Zoom Night – January

    Cystinosis Community Zoom Night Thursday, January 15 at 7:30 PM ET Zoom link: https://us06web.zoom.us/j/88075560653 Join our next Zoom night for an evening of connection and conversation. These calls are open to everyone living with and impacted by cystinosis, however, this call will focus on new/newer diagnosed families. It’s a welcoming space to share experiences, ask […]

  • May 2026

  • Thu 7
    May 7, 2026

    Cystinosis Awareness Day 2026

    Join the Cystinosis Awareness Day Movement! Honor our 2,000 warriors in the most meaningful way to you. Let’s educate, raise awareness and raise funds.   The 9th Annual Cystinosis Awareness Day (CAD) is May 7th or 5/7. 57 refers to the 57kb deletion in the CTNS gene, the most common genetic cause of nephropathic cystinosis. #WhatIsYour57? […]

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