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Cystinosis Research Network


February 2021

Rare Disease Day 2021

February 28

The goal of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. This year's Rare Disease Day theme is : Rare is many. Rare is strong. Rare is proud. This theme is our call to action. Let’s elevate our voices as a united rare disease community. Leading up to Rare Disease Day on February 28th, we invite each person impacted by rare disease to share their #RareIn60. Create a 60-second video, 60-second…

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July 2021

2021 CRN Summer Online Conference

July 17 - July 18

Mark your calendars for the 2021 CRN Family Conference!

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